Thank
you to all of you for
your love and continuing support of the Aubrey Rose Foundation!
Fall is almost upon us and that means
school time. For our family, Spencer is back at Eastern Kentucky University
for his sophomore year
and
Carly is getting ready for her Senior year at UC. We had a successful
Fireworks Dinner at the Syndicate and we plan on doing this
again. We also had a great turnout for the Harvest
Home Parade and what
a beautiful night that was!
Please mark your calendars! We are getting geared up for the Hearts
and Arts, our first all day scrapbooking event. We are co-hosting this
with the non-profit, Art Machine on October 11. And our Let's Dance
for the Heart of It is scheduled for November 14.
And please be sure to read about India
and how simple things can make alittle girl's life so much better.
And be sure to watch for a follow-up interview with Hannah
and her mom, Pacita, on channel 5 news at 11p tonight!
This month also is special because Spencer
is turning 20 on the 14th of September and Jerry is keeping me laughing
as we celebrate 26 years
of complete married bliss (his words not mine!) on September 17th.
Love to
you and your family!
Jerry,
Nancy, Carly, Spencer and Saint Aubrey Hollenkamp
George and Nancy Frondorf,
(Aubrey's Grandparents)
Hearts
and Arts - a Scrapbooking Event
Art Machine, Inc & Aubrey Rose Foundation are teaming
up with the art clubs of Sycamore and Norwood High Schools to hold
our first "Hearts & Arts" scrapbooking
event to be held at Sycamore High School. All the proceeds from the
Hearts and Arts - An All Day Crop will go toward the mission and goals
of the Art Machine, Inc. and the Aubrey Rose Foundation.
Join us for all or part of Saturday, October
11, working on your favorite
hobby -Srapbooking, quilting, knitting, crocheting, sewing, bead making,
etc. From 9am to 9pm at Sycamore High School, 7400 Cornell Road, Cincinnati,
OH 45242 You can enjoy classes, a vendor fair, have ample work space
in a fun atmosphere with door prizes every hour.
To reserve your spot, please go to http://www.aubreyrose.org/HeartsandArts.htm
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Let's Dance for the Heart of It!
Mark your calendars for Friday, November 14, at the Newport Syndicate.
It's a night of food, fun and celebration! Come to unwind and
to help raise money for children who have life-threatening medical
conditions. Your evening will include appetizers, a 
scrumptious
meal provided by the Syndicate, dessert and coffee bars, beer,
wine, silent and live auctions, a jewelry auction and live music.
We're excited to have both Hagit Limor from
Channel 9 news and Sandra Ali from Channel 5 news
as our emcees. And we will have some wonderful entertainment with
the magnificent Matt
Snow singing for us during cocktails and
dinner.
After the
auction, live from the Las Vegas Legends Series performer,
Garth Brooks (Look-alike) will amaze you with his stellar performance
of his mainstream music. He is quite the entertainer!
Help us make this special night of celebration by reserving
your tickets online, via mail or by phone.
Reserved
seating is available for groups of 10 or more when purchased together.
To purchase tickets or a table on line, please click here.
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Fireworks
Dinner
Our first annual Fireworks
Dinner was held at the Newport Syndicate on Sunday, August 31st.
What a night that
was. You could feel the
magic in the air... with the wonderful dinner we had, the open
bar, the guaranteed parking spot…and the entertainment was
tremendous. We had the best father-daughter acoustic duo in Cincinnati
with Milovan
and Anna! We have already booked them to come back next year!
After the Fireworks were over, one of our friends said that our invitation
was so true... I asked her what she meant and she said the "fireworks
were so close, you could feel them in your heart!" just like our
invitation had said! We had a front row seat for the fireworks and
didn't even have to fight to get it! Please put this on your calendar
for next year...You don't want to miss this!
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Harvest Home Parade
What a beautiful night we had for the Harvest Home
Parade. We had a
lot of our scholarship recipients there as well as some of the
parents, board members and friends of the Foundation. We also had
Larry Smith and his puppets ride on our float as well. It was a
great
night which raised some awareness of the Aubrey Rose Foundation.
India - a Little
Girl from Cincinnati
India is a little fighter who has been diagnosed with Cerebral Palsy,
severe seizure disorder, Juvenile Polyposis, Acid Reflux Syndrome,
Anxiety and massive brain damage but yet she is always smiling.
Earlier in the year, India had become very sick with Acute Pancreatitis
with Necrotizing Tissue. She was in the hospital for six weeks, most of
that time in the I.C.U. That was the first time out of all of her many
surgeries, hospital stays, etc., that her smile wasn't visible. These combined
episodes had taken a toll on India. Her mom had always taught India and
her son, Diondre, to find the joys of the simple things in life. They are
a smiling family.
One of the things that India has always enjoyed is taking baths. "Bath
time" has always represented her time to play and relax in
the water. It served as a soothing moment for her - one which brought
her much joy. But some added weight gain and heightened muscular
tightness made it difficult to safely get India into the tub. As
a result, her shower/bathing experiences became limited as it required
two people to get her into the tub.
We may not understand the freedom in being able to independently
get up and bath one's self. It seems so minor, but to India it
meant the world! For India, this liberty is not one that she freely
has, as she is dependent on her caregiver(s) to assist her. At
this junction in her life she needs some simple pleasures of life,
such as bathing.
Aubrey's Foundation helped India’s family get a bathing
system for India so that she can continue to enjoy her bath time!
Below is a thank
you letter from the Mom to let us know what this meant to them.
"I
just want to say "thank you" for
purchasing the bathing system for
India. Thank you for your willingness to open up your life and
heart
to help others. Thank you for sharing your memories of Aubrey
Rose, her smile and her zest for life.
The purchase of that bathing system will allow my daughter to take
a
bath. Everyday, many "able body" individuals do things
without even
giving them much thought, such as the ability to self feed,
self clothe
and so on. Often we forget about what it would be like if we
weren't able to do those things. For India, she loves taking
a bath. I
think
it is soothing for her to get in the water and relax. I can't
wait to
see the smile on her face when we place her in the tub, to
take a
"
real" water cultivating bath."
My hearts desire is to bless others as we have been blessed.
With warm thoughts,
LaDonna and Family
Healing
the World's Hearts - Hannah is Going Home
Finally, Hannah and her Mother, Pacita, will be going home
this Sunday morning! They are so excited about this and I would love to see
their family’s reaction to how wonderful Hannah looks. Hannah has gained
over 3 pounds since she has been here 
and
has grown an inch!!! That is amazing and such a great sign that she is healing
and starting to enjoy life as a “normal” child.
It’s amazing what the right blood and oxygen mix can do for your body!!!
Even Hannah has realized how much better she feels. In one of her conversations
with her father, Hannah told him, “Papa, you don’t have to carry
me anymore, I can walk now!” And she is walking and even running now!
We want to thank all of you who have had a part in Hannah’s repair
and in helping to make Hannah’s and Pacita’s stay a comfortable
one here in Cincinnati. For everyone who sent get well cards, for the many
phone cards they received, and the many other gifts of kindness that you
have shown, I know that Pacita and Hannah are extremely grateful for your
generosity. It’s because of our working with dedicated surgeons like
Dr. Manning and Dr. Eghtesady and all of the skilled staff at Cincinnati
Children’s, Debby and Carol at Delta Airlines for their support, all
the dedicated staff and volunteers at the Ronald McDonald House and all of
YOUR support that our Healing the World’s Hearts Program can bring
children from within the United States and from around the world to Cincinnati
Children’s for a life saving operation. In Hannah’s case, her
operation definitely SAVED HER LIFE!
Hannah
is a beautiful 4 yr. old girl from the Philippines whom we treated for
Tetralogy
of
Fallot (TOF), a cardiac anomaly that refers to a combination of
four related heart defects that commonly occur together. The four defects
include Pulmonary
stenosis, Ventricular septal defect / VSD, Overriding aorta, and
Right
ventricular hypertrophy. TOF affects about 5 out of every 10,000
births.
It is very treatable and about 95% of babies are repaired within
the first year of life instead of the 4th year of life.
Hannah
had suffered through years of not being able to run and play like
a normal child because of
low oxygen. This is the same defect that Carly, our oldest, was born
with. She was repaired 20 years ago on February 11 and is doing very
well but
could eventually need a valve replacement. 10 years previous to Carly’s
repair, TOF kids did die from that defect, but in this day and age,
it’s
unacceptable that Hannah would die from this defect. Thanks to everyone's
help she will not! I know it is just one child we are helping but it’s
one child’s life we have saved!!!
The "Healing the World's
Hearts" program was developed by Aubrey's Foundation with help from
Cincinnati Children's Hospital doctors, surgeons and corporate support
to provide "simple" heart procedures to sick children in the
U.S. and developing countries around the world. We say "simple" heart
procedures because these are surgeries which can be performed in the
U.S. that can SAVE A CHILD'S LIFE letting them go back home to live
a healthy and productive life without follow-up cardiac procedures.
VOLUNTEER
Click here to send Nancy a message
about volunteering for one of our many different events.
DONATE ONLINE
Click here
to donate to The Aubrey Rose Hollenkamp Foundation and put smiles on the
faces of families and siblings caring for seriously ill children.
DONATE BY PHONE
Call Nancy or Jerry Hollenkamp, Foundation Founders:
(513) 265-5801
DONATE BY MAIL
Send your contribution to:
Aubrey Rose Hollenkamp Foundation
c/o 4480 Oakville Drive
Cincinnati, OH 45211
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