Samantha was born with a unique heart and as a result has feeding difficulties, which has resulted in her needing a g-tube to be fed. Sammy also has a history of stroke and cerebral palsy.
Sammy had her second open heart surgery in July, 2020. She has recovered well and is doing well. She will continue to have cardiology appointments for life. Her team has already planned another surgical intervention for the summer of 2021.
Many people with single ventricle physiology end up needing a heart and liver transplant later in life.
Sammy's Mommy said she is a joy and a light to their world! Sammy loves stuffed animals, and enjoys playing with the toys her therapists bring. They are both interactive and fun!
The Aubrey Rose Foundation helped this family with an air purifier to help cleanse the air that she breathes.
Help us continue to support children, like Samantha!
Trent (age 9) and Tremell (age 7) are brothers who both were diagnosed with a terminal illness called Cystic Fibrosis.
The Aubrey Rose Foundation will be helping this family for Christmas.
We welcome you to join us in this special gift!
Below is a letter from Shardae, Trent and Tremell's mother.
Hello, my name is Shardae and I am a mother of 4 children ,2 girls and 2 boys. My 2 boys are Trent (9) and Tremell (7), both boys were diagnosed with a terminal illness called Cystic Fibrosis also known as CF.
Aubrey Rose Foundation would like to help this family with financial assistance for their medical bills along with Christmas gifts for each of the kids and Mom and Dad too! If you would like to help as well, please send an email to firstname.lastname@example.org or make a financial donation at online at https:www/aubreyrose.org.
We want to be able to put a smile on the faces of this whole family!!!
Here is what the kids would like:
Trinity (age 13): Camera (ARF has this), portable basketball hoop (might be hard to ship), laptop, new shoes size 9, new clothes - size adult large or Junior 7-8
Eternity (age 11): Lip gloss making kit, human doll hair head for styling, (ARF has both of these for Eternity). New clothes size adult medium or Junior 5-6. New shoes size 8, jewelry (bracelets, rings and necklaces).
Trent (age 9): Police and Army stuff such as dress up items and toys, warm-up suits, size 10.
Tremell (age 7): Warm-up suits (pants size 6, top size 7), kitchen and cooking play items.
Mom and Dad: Gift cards for groceries to Aldi’s, Wal-Mart, Publix, and for restaurants in their area. There are Red Robin and Applebee’s.
In order to ship and have this gift received by Christmas, I need to have everything by next Wednesday, December 16th.
Thanks for your interest in helping this family. Sometimes people just need a little help and that’s what we want to do ... relieve some of their burden so that they can continue taking care of their 2 sick kids!
Merry Christmas from the Aubrey Rose Foundation. We pray that everyone has a safe, healthy and happy Christmas season!
Juliann is 11 1/2-years-old and was diagnosed with a rare genetic data disorder called Cockayne Syndrome. C.S. causes children to age before their time. C.S. children have cataracts, hearing loss and are extremely sensitive to hot weather and cold weather just to name a few.
Though they are getting older like everyone else, they are getting older faster. Juliann is in an 80-year-old body. The average life expectancy for children with C.S. is 12. Many children pass away before this age.
We are seeing that Juliann is not progressing like she used to. We currently have to puree her food as her muscles are very weak, and she is sleeping more as her body is getting tired. She is in a wheelchair and cannot stand on her own.
Currently, she is regressing in her disease process. As she cannot maintain her body temperature, our house has to be very warm in the winter months and cooler in the summer. We are trying to make Juliann the most comfortable she can be and spend every second with our little girl.
The Aubrey Rose Foundation provided a Dyson Pure Hot + Cool Air Filtration System to help purify the air she breaths.
The Aubrey Rose Foundation thanks all of you who donate to the Aubrey Rose Foundation for your kindness, generosity and helping children like Juliann and their families!
Adahlynn is a six-month-old that aspirated meconium when she was born. This led her into developing persistent pulmonary hypertension. As her stay in the NICU continued, they discovered she was having difficult eating. They did a procedure on her to watch her swallowing, and discovered she has a Laryngeal Cleft-1.
She also has Dysphagia and high risk for aspiration. Since she cannot eat, they did surgery on her and gave her a gtube (gastrostomy tube). She is due to have another swallow study in a few weeks to determine the next steps. She will need feeding therapy and a Laryngeal Cleft repair in the near future in order to help her be able to one day eat orally.
The Aubrey Rose Foundation would like to help this family with their medical bills. If you would like to help us help this family, please click below.